Coping with Tourette Syndrome , livre ebook

136

pages

English

Ebooks

0001

Écrit par
Sandra Buffolano

Publié par
New Harbinger Publications

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136

pages

English

Ebooks

0001

Lire un extrait

Obtenez un accès à la bibliothèque pour le consulter en ligne En savoir plus

Publié par

New Harbinger Publications

Date de parution

01 janvier 0001

EAN13

9781626254329

Langue

English

Tics are a fact of life for kids with Tourette Syndrome (TS) and related disorders. And for most kids, the symptoms of their disorder aren''t even the most frustrating part-others'' reactions can make children feel anxious and extremely self-conscious.

Coping with Tourette Syndrome includes forty activities to help kids with TS, obsessive compulsive disorder (OCD), or attention-deficit hyperactivity disorder (ADHD) understand, prepare for, and mask their tics. Kids will also learn how to best explain their tics to friends and curious strangers using humor, games, or brief scripts they have prepared.

The activities in this workbook address managing TS and related disorders in specific situations, such as at school, at the movies, when out to dinner, on special occasions, when visiting friends for sleepovers or parties, when taking tests, and in places of worship. After completing these exercises, kids with TS will have all the tools they need to handle their tics with confidence and grace in any situation.

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Publié par

New Harbinger Publications

Date de parution

01 janvier 0001

EAN13

9781626254329

Langue

English

A nH e l pI n s t a n t i d s& K Pa r e n t s f o r B o o k Coping with Tourette Syndrome

A Workbook for Kids with Tic Disorders

40 simple, fun activities to teach kids to:•Cope with school & relate to friends •Manage behavior in public places •Strengthen selfesteem

SANDRA BUFFOLANO, MA

Coping with Tourette Syndrome

A Workbook for Kids with Tic Disorders

SANDRA BUFFOLANO, MA

Instant Help Books A Division of New Harbinger Publications, Inc.

Publisher’s Note

This publication is designed to provide accurate and authoritative information in regard to the subject matter covered. It is sold with the understanding that the publisher is not engaged in rendering psychological,ﬁnancial, legal, or other professional services. If expert assistance or counseling is needed, the services of a competent professional should be sought.

Distributed in Canada by Raincoast Books

Cover design by Amy Shoup Illustrated by Julie Olson

Printed in the United States of America

Library of Congress Cataloging-in-Publication Data onﬁle with publisher

First printing

Dedicated to my daughter, Lauren, whose courage and love inspires me to try to make life easier for others with Tourette syndrome

Introduction for Mental Health Professionals A Note to Parents A Special Message to Parents A Message to Young Readers Activity 1What Is Tourette Syndrome? Activity 2About Tics Activity 3The Phases of Tourette Syndrome Activity 4Planning Ahead for Your TS Phases Activity 5Rating Your Anxiety Activity 6TS and OCD Activity 7TS and ADHD Activity 8Explaining TS to Others Activity 9Answering Questions Quickly Activity 10Handling Stares Activity 11Helping Others Experience TS Activity 12Masking Tics Activity 13Using Humor Activity 14Using Signals Activity 15“Bad” Words Activity 16About Friendship Activity 17Making New Friends Activity 18Different Feelings Activity 19Feelings Game Activity 20Expressing Your Feelings Creatively Activity 21Feelings at School Activity 22Getting Used to Middle School or Junior High Activity 23Managing TS at Your Place of Worship Activity 24Managing TS at the Movies Activity 25When You Have to Dress Up

Contents

vii ix x xi 1 5 8 11 14 17 20 23 26 29 33 35 40 43 45 47 51 54 57 59 62 65 67 70 73

Activity 26Passing Time Activity 27Dining Out Activity 28Going Shopping Activity 29Contagion: New Tics and Behaviors Activity 30Visiting Others Activity 31Hosting Parties Activity 32Going to Sleepovers Activity 33Keeping Score When You Shouldn’t Activity 34Being a Good Loser and a Good Winner Activity 35Organizing for Morning and Evening Activity 36Getting to Sleep Activity 37Studying for Tests Activity 38Taking Tests

Activity 39Brothers and Sisters Activity 40Revisiting the Phases of TS Parent Appendix: About Coprolalia

Coping with Tourette Syndrome

75 78 81 84 86 89 93 96 98 101 104 107 110 112 115 120

Introduction for Mental Health Professionals

Children with Tourette syndrome face a unique set of issues that are distinctive to the disorder and require innovative management. While tics and tic disorders are the signs by which Tourette disorder is diagnosed, it is the related conditions that comprise the “syndrome” and make management difﬁcult. These comorbid disorders—obsessive-compulsive disorder, attention-deﬁcit/hyperactivity disorder, learning problems, and anxiety—are addressed in the activities inManaging Tourette Syndrome. This workbook is also helpful for dealing with PANDAS, or pediatric autoimmune neuropsychiatric disorders associated with streptococcal infection.

Although the term “counselor” has been used throughout the activities for simplicity, this book is designed for use by psychologists, therapists, and school psychologists. Several activities focus on skills that help children succeed in school. It is also written from the perspective that parents are important partners. Some activities ask children to seek their parents’ input, and parents may want to share newly gained knowledge with mental health professionals or school personnel.

While some childrenﬁnd it possible to suppress their tics for short periods, doing so often results in a period of greater intensity and frequency of symptoms. For this reason, many activities present alternative solutions.

It is recommended that the activities be completed in the order given, as some build on previously acquired knowledge. For example, the characteristic waxing and waning of TS symptoms has been analogized to the phases of the moon. Grasping the analogy, which is presented early on, is important to understanding later activities. Some activities are situational and can be completed out of order or as the situation, such as visiting relatives or going shopping, arises. Many activities address concerns that are common to all children, although these concerns often have a stronger impact on children with TS.

A Note to Parents

Tourette syndrome is a chronic neurological condition characterized by multiple motor and vocal tics that persist for more than a year. Naturally, the symptoms of Tourette cause a great deal of stress in children, but the problem is often exacerbated by self-esteem issues, difﬁculty with peers, and a variety of behavioral problems, including hyperactivity, distractibility, aggressiveness, and sleep disorders.

But even though Tourette syndrome is a chronic condition, children can learn new skills to cope with their symptoms, and they can live happy and fulﬁlling lives. Written by Sandra Buffolano, a psychologist with over eighteen years experience in working with children who have Tourette syndrome, this workbook goes a long way to teaching children practical skills. By going through the activities in the book, children will not only learn for themselves about their problem, but will be able to explain it to others. They will learn to be more self-conﬁdent, to plan ahead in order to make their symptoms easier to handle, and to ask for help when they need it.

Children learn emotional and behavioral skills just like they learn academic or athletic skills, through practice and encouragement. Your child will likely need your guidance in going through this workbook, and he or she will certainly need your encouragement.

As you help your child, you will probablyﬁnd out that it is difﬁcult for him to talk about certain issues. Never force your child to talk if he doesn’t want to. The best way to get children to open up is to be a good role model. Talk about your thoughts, feelings, and experiences as they relate to each activity, stressing the positive ways that you cope with problems. Even if your child doesn’t say a thing back, your words will have an impact on his behavior.

There is no wrong way to use this workbook to help your child as long as you remain patient and respectful of your child’s feelings. If your child is being seen by a counselor, make sure you share this workbook with the therapist. She may have some additional ideas on how best to use the activities.

Tourette syndrome can be very difﬁcult for children as well as their families. Your patience and understanding will make all the difference.

Sincerely,

Lawrence E. Shapiro, PhD

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