Quality of life and its measurement: important principles and guidelines

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2005

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Alonso Verdugo , Ángel Miguel , Schalock , L. Robert , D. Kenneth , Stancliffe , J. Roger , Keith

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Salamanca

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01 octobre 2005

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Colecciones : GID. Artículos del Grupo de Investigación sobre Discapacidad
Fecha de publicación : oct-2005
This article discusses the principles that should guide the measurement process, the major interrogatoires (i.e. who, what, when, where, why, and how) of QOL measurement, issues and procedures in the cross-cultural measurement of QOL, and the current uses of QOL data.

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Publié par

Salamanca

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01 octobre 2005

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Sociologie, société et politique

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Abstract Keywords cross-cultural quality of life, intellectual Background The importance of the valid assessment disability, quality of life, quality of life data, quality of quality of life (QOL) is heightened with the of life measurement increased use of the QOL construct as a basis for policies and practices in the ﬁeld of intellectual dis-Overview ability (ID). Method This article discusses the principles that The current approach to the measurement of quality should guide the measurement process, the major of life (QOL) can be characterized by ( 1 ) its multidi-interrogatories (i.e. who, what, when, where, why, mensional nature involving core domains and indica-and how) of QOL measurement, issues and proce- tors; ( 2 ) the use of methodological pluralism that dures in the cross-cultural measurement of QOL, and includes the use of subjective and objective measures; the current uses of QOL data. ( 3 ) the use of multivariate research designs to evalu-Results Based on the above methods, the article pre- ate the ways that personal characteristics and envi-sents a number of important guidelines regarding ronmental variables relate to the person’s assessed QOL measurement. QOL; ( 4 ) the incorporation of systems perspective Conclusion From a measurement perspective the use that captures the multiple environments impacting of the QOL construct is changing. Initially it was people at the micro, meso, and macro levels; and ( 5 ) used as a sensitizing notion, social construct, and the increasing involvement of persons with intellec-unifying theme. Increasingly, it is being used as con- tual disabilities (ID) in the design and implementa-ceptual framework for assessing quality outcomes, a tion of QOL-oriented assessment, research, and social construct that guides quality enhancement evaluation. The purpose of this article is to integrate strategies, and a criterion for assessing the effective- what we currently know about the measurement of ness of those strategies. This new role places addi- QOL and to suggest, based on that knowledge, a tional emphasis on the valid assessment of one’s number of relevant principles and guidelines. There QOL. are four major sections to the article: ( 1 ) the princi-ples that should guide the measurement process; ( 2 ) Correspondence: Miguel A. Verdugo, PhD, INICO, Universidad de the major interrogatories (i.e. who, what, when, Salamanca, 37005 Salamanca, Spain (e-mail: verdugo@usal.es). where, why, and how) of QOL measurement; ( 3 ) © 2005 Blackwell Publishing Ltd

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Quality of life and its measurement: important principles and guidelines M. A. Verdugo, 1 R. L. Schalock, 2 K. D. Keith 3 & R. J. Stancliffe 4,5 1 INICO, University of Salamanca, Salamanca, Spain 2 Hastings College, Hastings, NE, USA 3 University of San Diego, San Diego, CA, USA 4 University of Minnesota, MN, USA 5 University of Sydney, Sydney, Australia

Journal of Intellectual Disability Research volume 49 part 10 pp 707 – 717 october 2005 Blackwell Science, LtdOxford, UKJIRJournal of Intellectual Disability Research0964-2633Blackwell Publishing Ltd, 2005 49 10 707717 Original Article Quality of life and its measurementM. A. Verdugo et al.

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